Good, Great, Better…

I have nothing to report but a GREAT week!

We decided to reschedule her bone marrow biopsies for Monday before our appointment with our oncologist.  I realized on Tuesday that if she didn’t get sedated for scans and could do it all awake that would make her not eating until around 6:30 pm.  I wouldn’t like that at all!!!

She walked into that hospital both days, like a lovely young lady, and checked herself in, told them her information, never needed mommy for anything!  Took deep breaths through her IV starts.  What a CHAMP!

So, she did it!  She drank all her contrast.  Things have changed so much! 

I was going thru all “the games” we have played forever to get her to drink it, finally she looked at me and said “Mom, how much more do I have to drink?”

I said “Only to this line!”  She said “Okay, grabbed the cup from me and started chugging!”  Handed me back the cup and said “Can we go now?”…..

She held still through all the scans!  AMAZING! 

 and we walked out of that hospital again with gifts and hugs and smiles and feeling so blessed to be part of such an amazing facility that takes such great care of us and everyone!

The doctor sent us the results, and everything is STABLE, the tumor looks a little smaller, there is no new growth and her cancer labs came back “Normal”…

STABLE, NORMAL, SMILING, truly thankful and LIVING!!!!!

 

Monday will be new, sedation #45 for the princess, quick and (easy???) in the Oncology clinic, than we will meet with our Dr’s.  If these bone marrow results come back clear again…..this will be our LAST scheduled bone marrows!!!!!!

Thank you for living this journey with us, thanks for the hope and prayers.

“We live, we love, we forgive and never give up; because today is a gift sent up from above, and today we remember to live and to L-O-V-E!

Published in:Updated News |on July 16th, 2010 |

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17 Comments Leave a comment.

  1. On July 16, 2010 at 1:03 pm Grammie Stella Said:

    Thank you Jesus!.. Alexis, you are such a miracle, and to see how much you have grown-up over these 4yrs is such a blessing. Thank you for allowing me to be a part of your “hospital times”. Watching you be so brave is really something, I know of adults that can not do what you do. God is blessing all of us each and every day with you. I Love you.

  2. On July 16, 2010 at 6:28 pm Shelley Said:

    Thank you for the updates they are very much appreciated. What a brave family you are. Dr. Austin is also an inspirtation! Dr. Austin…hey that has a nice sound to it!

    Hugs to all of you :)

  3. On July 16, 2010 at 10:23 pm Ziggy Said:

    God bless that little girl of yours!
    We can all learn a lesson from her demonstrated strength… a testament to her mother!!
    Bless you all, and hang in there… He is making you all stronger. And Alexis will kick some butt on this, I just KNOW it!!

    Zig

  4. On July 17, 2010 at 5:11 pm Janet Said:

    Jill,

    Im glad everything went well. I pray for Monday to go well for all of you as well. God Bless all of you.

  5. On July 17, 2010 at 6:57 pm Vera Blake Said:

    Miracles happen over and over and we have one blessed Savior for thanks. You are all truly amazing and the girls get cuter all the time if that is possible. How to do better than perfect/ Thank you Jesus for this another miracle time. Love all of you Vera and Frank Blake

  6. On July 19, 2010 at 7:01 am Jeanne Said:

    Jillian,
    I am sitting here with tears of joy in my eyes. I am so very pleased that things (processes, tests, and results) went so well this time around. It is truly a blessing to all of us to witness the hand of God in Alexis’ life.
    I still pray for Alexis to have complete healing, and to continue hitting all of the wonderful milestones as she grows up. My prayers include you and JB, and especially Austin (who is growing into a fine young person in her own right). It is such a joy to read on here and Facebook all the good news of each of you.
    Thank you as always for sharing the story as you live it,
    Jeanne

  7. On July 19, 2010 at 8:25 am Jodale Brinkley Said:

    Jill, I am so happy that all is great news. I will pray for today’s too. She is such a trooper and so great. You are very blessed. Love Jodale

  8. On July 20, 2010 at 4:30 pm Kathi Trostad Said:

    Jill,the Amazing Grace of Jesus! Alexis is an inspiration and a huge blessing! Have a great rest of the summer for just plain old fun!!!! Proud of all of you!!! Praying in Poulsbo,Kathi

  9. On July 22, 2010 at 7:30 am Lenette Said:

    I am so amazed every time I read about how strong Alexis is and how well she does with her testing!! I am really blown away with her maturity through all of this, she is such a wonderful sweetheart! Thank you God for the results of these tests and we will continue to pray for Alexis.
    Love from us to your whole family.
    Lenette & Family

  10. On July 23, 2010 at 7:50 am John Graden Said:

    Thank yuo for continuing to share your journey with us. The latest news reminded us of the Lord’s love for each of us and of His love and mercy for Alexis.

    Stable and normal are such wonderful words. We rejoice with you.

    Enjoy each day with your wonderful family

    all our continued love and prayers
    John, Marlene and Michelle

  11. On July 24, 2010 at 4:04 am MJ/Angel_Wings Said:

    Hi Alexis I am so thankful that you are doing so well and praying that you have a wonderful weekend. Please know that I am thinking about you and keeping you close in prayer always. Hugs and Blessings MJ/Angel_Wings

  12. On July 27, 2010 at 4:24 pm pam Said:

    Jill, I assume no-news-is-good-news about the BM bx…..it was so good to see you all last week; prayers continue!

  13. On August 9, 2010 at 7:36 pm shirley Said:

    just wonderful to read this latest news, and see this very beautiful young lady, so poised.
    and so, it has been 4 years. amazing. amazing Grace of God…alexis GRACE…..
    shirley
    montreat nc

  14. On August 11, 2010 at 2:46 am Jeanne Said:

    Thinkin of you Douglas folks. Hope all is well!
    Jeanne

  15. On August 12, 2010 at 3:38 am MJ/Angel_Wings Said:

    Morning Little One I hope you are well and happy and enjoying the last weeks of summer !! Please know that I am thinking about you and keeping you close in prayer always. Hugs and Blessings MJ/Angel_Wings

  16. On August 15, 2010 at 6:57 am MJ/Angel_Wings Said:

    Good Morning Braden and Family

    An Invitation To All Prayer Warriors

    The Prayer Warriors at Angel_Wings will be
    holding a Prayer Vigil on Thursday, August 19th.
    between 8-9 pm EST for all the families on our
    Angel_Wings Prayer Lists and our Angel families of
    children,teens and adults who have gained their wings.
    If you have someone you would like us to pray for or a special request for yourself, please don’t hesitate to let us
    know..

    MJ/Angel_Wings/AngelWingsRemembers

    Angel_Wings Prayer Warriors

    AngelWingsRemembers

  17. On August 15, 2010 at 6:58 am MJ/Angel_Wings Said:

    Sorry Sweetie I know your name is Alexis Grace !! Hugs and Blessings

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