STOP TIME PLEASE!!!!!
Last Monday, this is what we did….
We had her 4 year “well check up”! Yeah! All looked great & normal! This is her fantastic pediatrician who we are so grateful for! She brought him the balloon.
There is a new clinic we will be adding to our lists of “follow ups” after treatment -stuff at Children’s. But I will learn to be grateful for every car ride, schedulers, nurses and clinics to be attending.
Scans are on the 13th and 14th of July. Man, we are close…
We will be doing it all this time, MIBG, CT, Bone Marrow Biopsies, labs, injections, follow up appointments, sedations …
ONE DAY AT A TIME!
(i am trying so hard to freeze time, it isn’t working…it’s slipping away from me way too fast!)
Last week, Alexis received 4 shots and she came down with a high temp of 104 on Wed, then on Friday, Austin came down with the same thing. Alexis has learned compassion so well from her sister, I had to photograph it…
We were at my mom’s, so the girl’s got extra TLC from 2 mommies. Thank you Grammy!
This last information and prayer requests is taken from a fellow Neuroblastoma warrior’s website, written by his mother, whom we are in a online community for parents together, we share information, and tears and hope.
Her son Max’s website is:
http://www.caringbridge.org/visit/maximilianmenez/journal?jid=5716273
Written by Mother to Max:
“Finally, our Neuroblastomacommunity has gained several angels over the past month. It’s so surreal getting the message in your inbox that one more child has succumbed to this awful disease. That’s part of the “new normal” that no one talks about — almost every week, another warrior loses his or her battle, and we share in it all. Even if we didn’t interact with the family personally, we are all in this battle together, and when one loses, we all do. Little pieces of my heart break off and fly to heaven witheach child who passes, and I know my pain is only the tiniest fraction of what their parents and families feel. I know there is nothing we can do but be there to listen and to hold them up in prayer, so I’m asking you to remember the following folks in your own prayers tonight, who have all lost a beloved child in the past month:http://www.caringbridge.org/visit/missmelina)
*The family of 11 year-old Sarah Williams (http://www.caringbridge.org/visit/sarahw)
*The family of 4-year-old Ember (Hill)
*The family of 4-year-old Cody (Dutton)
*The family of 3-year-old Brenda Truong
*The family of 13-year-old Melina Riniolo”
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Jillian and Family (and all the Families in your last message)
Our prayers and wishes for hope and comfort go out to you and everyone you have met and grown to love at Childrens and everywhere your website reaches.
Our prayers continue for Alexis, especially during her testing in July. We will be with you in spirit and love.
Thank you for sharing
David and Marsha
We continue to be graeful for the stability in your life. We thank the Lord for each day that He gives to Alexis and your family.
All our love and prayers
John, Marlene and Michelle
“Alexis…
I will be praying for you during your time of testing and hope to hear good news!
You are such an inspiration to all that know you!
You are getting so big and are such a smart little girl!
You have such an incredible family that takes such good care of you and love you so much! We all love you Alexis… How could we not?
Keep being brave and strong know their are just so many people praying for you!
Love Tabitha (Tabby) <3 <3 <3
Hi Jill,
I will pray for Alexis on those days.I hope all goes well. Ill pray for you too.
Janet
Good evening, sweet ones.
I am delighted and grateful to read Alexis did so well with her 4-year old check up. I know the Lord is watching over her and sending blessings and tender mercies to Alexis each and every day. I’ve marked my Prayer Calendar with the July 13-14 for prayers during those two very busy days for Alexis and all of you.
Please let Alexis and Austin know I’m praying that they will be over the little bugs very, very soon. The summertime is never a good time to feel yukky. 8o(
I am sending all of you oodles of hugs, praises and prayers. Many thanks for posting the prayer requests for the families of some of heaven’s newest angels and the heartfelt words of a CA/NB Mom.
Angel Hugs,
Ms. Polly @ Angel_Wings Prayer Warriors
Jillian,
Thanks for the update on the girls (yep, I look here for news on both girlies). Sorry you were all hit by a bug.
Please know that even when we are out of touch I lift your family up in prayer & praying for those you listed above too.
Have a wonderful summer!
Jeanne
Thinking of you all and lifting the families mentioned above up in prayer this morning. We love you all!
Lenette & family
I am thinking and praying for your next two days. God bless.
Jeanne
Jill, Will pray for you all and the upcoming scans etc. Thanks for the update. Love JOdale
Praying for you all this week of testing!! You are ALL amazing gifts from God and we love each of you very much!
Thank you so much for signing Elijah’s guestbook and pointing me to your site. It is SO SO good to see your beautiful daughter, despite all the numerous treatments, doing so well and out of treatment today. I will be praying that all the tests this week come back looking great. It is just so encouraging to see Alexis’s story. Hoping and praying that all goes really well, and good results are returned to you quickly. God Bless!
An Invitation To All Prayer Warriors
The Prayer Warriors at Angel_Wings will be
holding a Prayer Vigil on Monday. July 19th.
between 8-9 pm EST for all the families on our
Angel_Wings Prayer Lists and our Angel families of
children,teens and adults who have gained their wings.
If you have someone you would like us to pray for who
is not on our payer lists please don’t hesitate to let us
know..
MJ/Angel_Wings/AngelWingsRemembers
Angel_Wings Prayer Warriors
AngelWingsRemembers