SCAN TIME….NO SEDATION….YAH! YAH! YAH!
Can I just say first off…
* This is from today meeting with the www.wekeepscore.org guild who raises money for Childhood cancer research! Love them!
I LOVE CHILDREN’S HOSPITAL! They are so wonderful, they did so many beautiful wonderful things to make this process easy & fun for Alexis!!!!
The day started with arriving and drinking the contrast, and playing games to do so. We of course brought “Rosabella” with us all day.
Yesterday’s injection was great, no tears, all bravery, great nurses and staff. WE ARE SO BLESSED!
A phone call to daddy & Austin to say we were doing alright and having fun….
When we were waiting to go back 2 hours later, hungry, the anesthesia team had another situation to deal with which was putting our schedule later and it’s a timed thing.
I asked the nurse what we could do, she said that we needed to start an IV, and get her injected with her IV Contrast…
Alexis said “I CAN DO THAT, I’M NOT AFRAID, LET’S GO….I’M READY TO GET THAT IV NOW!”
After the first attempt with a blown vein, Alexis said “That’s OK, I have another hand for you, try this one!”
(Did I mention no tears, no fear….)
Then she walked into the CT and said “I can do this, no mask right now, OK?”
And she did it!!!! Now it was time for the hour and a half MIBG scan….Anesthesia was ready for her, but she said “Let me try!” Guess what??????? SHE DID IT!!!!
Because we weren’t going for bone marrow this time, she didn’t have to be sedated.
They said she is by far one of the youngest most brave children they have ever seen. WE HAD NO TEARS ALL DAY!
The machine, if you look close moved around her body and she looked like a squished pancake! Glad she’s not claustrophobic! I couldn’t have done it! She’s my hero!
The 3 year old remained still (completely still) for 2 1/2 hours!!!!!! I am so proud of her!
She got her popsicle and we held hands and ran out of that hospital together very giddy!
How great to run out, instead of carrying her loopy and out of it for hours! Thank you Lord!
Oh, i guess you might have checked this site for the results, not a blow by blow….well….
THE SCANS ARE STABLE! more than stable! The MIBG only showed 1 tumor and it is NO BIGGER.
WE GRADUATED!!!!! We’ll scan again in JULY 2010…..I am on cloud 9!
We have promises of hope for now, and medically speaking WE ARE IN A GREAT PLACE! Thank you Lord for all your gifts these past 2 days! We love you and tonight we celebrate!!!!
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YAY!!!!!!!!!!!!!!!!!!!!!!!!!!!! What a blessing! You all are AMAZING!!!!!
That is so great that you could turn it into a children’s story to help other kids be brave. Has Alexis ever thought of writing a book with you?
Thanking God with gratitude and joy, and sending love and HOORAYs!!!
Jill what an amazing day for you and Alexis to NOT have the sedation. I really can not imagine doing that, she is so BRAVE and a super Star for sure. She deserves lots of congrats for staying still that long. I can’t even stay still that long myself. She sure is patient. Great kid, you have to be so very proud. I am so happy for you all. Stable is super to hear. Thanks you Jesus. JOdale
Wow, Alexis! You ROCK!
Jillian, I am so happy about how the day went for you and the results!
Now - - prayers of Thanksgiving!
Jeanne
I am jumping for joy… REALLY! I stood up and jumped in the kitchen and praised God for the wonderful news!!! So happy and so proud of Alexis being such a big girl!!
Love to all of you,
Lenette & family
You know my dear………she is her mama’s daughter….no surprises here at how brave, beautiful, smart, wonderful and amazing she is. Miss Alexis has a shining example to follow everyday. Another day to count as a blessing, and more reasons to celebrate ahead. Big hugs and woo hoos for all of you. Keep looking up!!! Love you!
Hello from Cozumel, Mexico Alexis!!!
Rowdy and I are so very proud of you during your tests this time. And such happy results for you. Your Mom and Dad and Sister are very proud of you, as are all of us out here in computer-land.
Rowdy says, “Hope your puppy Rosella is growing big and strong and behaving like a good puppy should.”
And Marsha says, “Thank you God and thank you Childrens for such a nice day for you and for such good results. YEAY”
David and Marsha
What a day of rejoicing that will be!!!!!!! Thank you, Jesus, that you NEVER leave US or forsake US!!! Thank you for this precious little girl who is indeed your warrior child! Alexis will have many crowns to throw at your feet! Big hugs, Jill! Much love in Poulsbo,
Kathi
Amazing! Alexis is amazing. Jill, you are amazing. GOD is the most amazing of all. Such wonderful news!! I am so happy and touched by your stories. Love you, Joy
Oh, Jill, what wonderful news! And I have NEVER, in 30+ yrs, seen a 3 yr old be still for that long! That is REALLY the Holy Spirit’s calmness in that little girl! I was so happy to see you thru the glass, a whole floor away - that was special!
Praising God for all His blessings!!
Praise God! What an amazing couple of days for both of you! She is certainly worthy of praise for her bravery and her patience! Way to go, Alexis! Love that she is STABLE, love that she has GRADUATED and love that she is ALEXIS! What a special child of God! Blessings to you all! Thank you so much for the wonderful pictures too
Wow! I still cannot believe it, what a brave little girl, you rock Lexi!!
And a big huge thank you to our Father God! He is to be praised!
We are so trhilled!
stephanie
Praising God and celebrating with you, friends! Loved the blow by blow and the results. I am SOOOOO impressed that she didn’t have to be sedated. Samara hasn’t had to be sedated for her CTs for a long time, but those are only a few minutes long. 2.5 hours is out of this world. Thank you, God, for the peace that you placed in Alexis’s heart and mind and body. And thank you, God, for the normalcy/stability!!!!! Love, the De Jonges.
Praise God that a 3 year old is so brave and able to understand and make the right choices. Our God is Good and still in the miracle business. July 2010 is good news you have 6th months to do all the normal things. Keep us posted and thanks so much for the neat report. Vera Blake
Jill,
Yahoo glad to hear she is stable, what a brave little girl she is. I will keep praying for all of you. Love the pics of Alexis and Austin. Take care and Have a great weekend.
I am so glad to hear that everything is “stable”!!! Thank the LORD you have have 6 months with no testing!!! We will still pray for Alexis, Austin, You and JB and that all stays “normal”. I love you all very much!!!
Tasha Austin Maykela and Del
Hi Jill,
We met at Cascade a long time ago. My family moved to Boston last March and I have been keeping up with your blogs. I am so happy for you and your family. Alexis is so brave, what a trooper! I think you are an amazing mom!
I’m all welled up, so proud of her. What a curageous little girl. I am so beyond impressed! I am so happy to hear the great results too! For a day that you go into dreading so much, it sounds like it couldn’t have gone better! Yay, yay, yay!
Jill,
This is what we have prayed and hoped for.We rejoice with you. We thank the Lord for his kindness and love.
Enjoy the next six months and live like a “normal” family.
all our lvoe and prayers
John, marlene and Michelle
So wonderful to hear how well she is doing! Your family is so beautiful and you are, and have been since I met you, such an inspiration. I am blessed to have known you!
Love and prayers from Mobile, AL
Megan Wallace
Hi Alexis and Family I was thinking about you today and wanted to come by to say HI Please know that I am thinking about you and keeping you close in prayer always. Hugs and Blessings MJ/Angel_Wings