SCAN TIME….NO SEDATION….YAH! YAH! YAH!
Can I just say first off…
* This is from today meeting with the www.wekeepscore.org guild who raises money for Childhood cancer research! Love them!
I LOVE CHILDREN’S HOSPITAL! They are so wonderful, they did so many beautiful wonderful things to make this process easy & fun for Alexis!!!!
The day started with arriving and drinking the contrast, and playing games to do so. We of course brought “Rosabella” with us all day.
Yesterday’s injection was great, no tears, all bravery, great nurses and staff. WE ARE SO BLESSED!
A phone call to daddy & Austin to say we were doing alright and having fun….
When we were waiting to go back 2 hours later, hungry, the anesthesia team had another situation to deal with which was putting our schedule later and it’s a timed thing.
I asked the nurse what we could do, she said that we needed to start an IV, and get her injected with her IV Contrast…
Alexis said “I CAN DO THAT, I’M NOT AFRAID, LET’S GO….I’M READY TO GET THAT IV NOW!”
After the first attempt with a blown vein, Alexis said “That’s OK, I have another hand for you, try this one!”
(Did I mention no tears, no fear….)
Then she walked into the CT and said “I can do this, no mask right now, OK?”
And she did it!!!! Now it was time for the hour and a half MIBG scan….Anesthesia was ready for her, but she said “Let me try!” Guess what??????? SHE DID IT!!!!
Because we weren’t going for bone marrow this time, she didn’t have to be sedated.
They said she is by far one of the youngest most brave children they have ever seen. WE HAD NO TEARS ALL DAY!
The machine, if you look close moved around her body and she looked like a squished pancake! Glad she’s not claustrophobic! I couldn’t have done it! She’s my hero!
The 3 year old remained still (completely still) for 2 1/2 hours!!!!!! I am so proud of her!
She got her popsicle and we held hands and ran out of that hospital together very giddy!
How great to run out, instead of carrying her loopy and out of it for hours! Thank you Lord!
Oh, i guess you might have checked this site for the results, not a blow by blow….well….
THE SCANS ARE STABLE! more than stable! The MIBG only showed 1 tumor and it is NO BIGGER.
WE GRADUATED!!!!! We’ll scan again in JULY 2010…..I am on cloud 9!
We have promises of hope for now, and medically speaking WE ARE IN A GREAT PLACE! Thank you Lord for all your gifts these past 2 days! We love you and tonight we celebrate!!!!









