Alexis Grace Douglas’ PrayerSite

I never thought or imagined that in one year all things could change, and none of these were in the plans, or even in my wildest imagination. We sold our apartments (which we’d purchased our first month of marriage), we leased our theater to the City and are out of the theater business after 16 years, our dog of 10 years died, JB’s father passed away, and of course the biggest change, that the baby I was carrying, due in just a few months would be born with this horrific disease and have to endure more than imaginable!

You never know what’s around the next “corner” in life. I never realized how quickly my life would change & be different… If you would’ve asked me a year ago, if I was capable of giving 3 shots a day to my baby, and that we would have to learn things in the medical field, and do things to our precious child, and watch her suffer? I would’ve said you were out of your mind- I could never do THAT! But, it’s amazing what you can do, when you are faced with it. Or what you will do, when you don’t have a choice.

If it weren’t for having to be so “on top” of Alexis’s medical care and giving medications around the clock, and needing to be there for Austin & give the girls & JB everything I have left in my body & mind; I’d be a PUDDLE & I wouldn’t want to get out of bed. But the fact is: You do what you have to do!!! God will give you the strength, and people like you who are reading this, will give you the support and the prayers, when you feel there is not a prayer left in your soul! Thank you for the prayers & support!

We finally got our schedule for our treatment. We have a clinic appointment on Monday, to check labs, etc…- Then an injection on Wed, - then on Thursday, we RE-TEST. She will be sedated, and then they will do a cat scan, MIBG scan and a bone marrow biopsy.

We have to know where she is at, and I am nervous about the results. We haven’t re-tested since November, and she had chemo the first week of December.

We will start chemotherapy again a week from Monday, it will be out-patient for 2 weeks and then 1 week of “rest”. Please pray for Alexis as she goes thru these next tests that she handles the sedation well, and that all the scans work and they can see clearly where things are at. Please pray for strength for all of us, during this hard time and for Alexis to feel NO pain, or discomfort going forward.

I have 3 new pictures to add to this site, (that are adorable!!!) but it’s not working, so as soon as I can, I will. She is sitting up wonderfully & 1 week ago she said “Ma Ma”- MUSIC TO MY EARS!!!!